2 edition of ADOLESCENT SIBLINGS OF DIABETICS: PERCEPTIONS OF THE ILLNESS EXPERIENCE. found in the catalog.
Source: Dissertation Abstracts International, Volume: 55-09, Section: A, page: 2717.Thesis (PH.D.)--SAINT LOUIS UNIVERSITY, 1994.School code: 0193.
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|Number of Pages||53|
Although numerous references are made to the stressful, deleterious effects of chronic illness on siblings of pediatric patients, very few studies have included siblings of diabetics, especially adolescent siblings. In addition the use of siblings as informants has been overlooked by researchers in favor of parental reports. The study examined the impact of a childs insulin dependent diabetes as perceived by the adolescent sibling in regards to role change, changes in power structure, changes in family boundaries, and changes within family communication patterns relating to the illness. The study also sought to discover common concerns of adolescents about their diabetic siblings and their perceived impact on the diabetics control and adjustment to the disease.Data were collected through the use of a semistructured interview schedule developed and administered by the investigator. Eleven siblings and parents from six families participated in the study. One parent from each family completed a Parent Questionnaire solely to collect demographic data.The majority of the siblings had a basic understanding of diabetes, its manifestations and its consequences. The siblings who were the youngest at the time of the diagnosis had the least information about the disease. No relationship was found between adolescents knowledge and their involvement with the care of the diabetic. Regardless of age or birth order, all the siblings adopted a protective role toward the diabetic. While having a diabetic brother/sister was a stressful experience for them, the siblings in the study appeared to be coping very well with the issues and conflicts directly related to the diabetes. Siblings in families who perceived their parents gave preferential treatment of the diabetic described more negative changes than did those who did not perceive parental preferential treatment. All the siblings reported some personal growth as a direct result of the illness. File Size: 10MB.
Self-perception and family functioning in healthy school-age siblings of children with asthma and diabetes, and healthy children.
For younger children, consider using a 'communication book' to inform your child's teacher of any important diabetes-related issues. Clin Psychol Rev 2003, 23 6 :787—800.
They reported often receiving less attention from parents, like other studies examining Sibling of youth with developmental disabilities or cancer [,,]. 1999, 30 2 : 352-359.
Their adolescent child with T1D provided their HbA1c level from their most recent clinic visit, their self-reported general health, and completed a measure of diabetes self-care. Sibling were also aware of potential short term consequences of T1D such as weight loss and tiredness, pain, and insulin reactions [,,]. JBI Database System Rev Implement Rep 13 5 :293—329• Conclusion Our results support prior studies in showing that CSs feel a greater level of guilt compared to adolescents without disease-stricken siblings, whereas, interestingly, CSs and DMSs were found to experience similar levels of guilt.
Assessing experiences of children who attended a camp for children with cancer and their siblings: A preliminary study. 1995, 27 3 : 189-192. Friends provide support by accepting adolescents with diabetes in the group, treating them as if not having the disease and, at the same time, worrying about their feeling sick. Tangney JP, Burggraf SA, Wagner PE 1995 Shame-proneness, guilt-proneness, and psychological symptoms. In the present study, according to the proposed objective, data analysis resulted in themes and categories that explained the adolescents' experience of type 1 diabetes mellitus.
Clinical Child Psychology Program, The University of Kansas, 1000 Sunnyside Avenue, Room 2015, Lawrence, KS, 66045, USA Kimberly S. This trial aims to assess the effectiveness of a family-based, psychological intervention to improve outcomes in those with poorly-controlled type 2 diabetes. Although Sibling reported assuming more responsibilities, parents should not ask Sibling to assume more responsibilities than reasonable, and explain why they may sometimes be asked to assume those responsibilities.
Development of the child attitude toward illness scale. Journal of Child Psychology and Psychiatry, 39 129—46. Sessions will be delivered by a health psychologist who is trained in motivational interviewing techniques.
 in a qualitative study of 40 parents of adolescents with T1D, found parents indicated that they experienced ongoing struggle, worry and frustration about their parenting role.
Baseline assessment During the twice-weekly out-patients clinics eligible patients will be approached by the researcher, given information about the study and invited to participate.
FINAL CONSIDERATIONS This study shows the perception, comprehension and meanings participant adolescents assigned to the experience of having type 1 diabetes; hence, the obtained results cannot be generalized.